How the site works
Welcome to the lived experience project! A place to log Tourette and OCD experiences and read about the ways these conditions can affect our day to day.
Below is a live summary of how difficult people in the community have rated different experiences. These could include flying with OCD, experiencing Tourette syndrome in cold weather, or how drinking coffee affects tics.
You can provide ratings on individual articles. These are the latest ratings so far:
You can also log experiences using a simple form with drop down options. This was designed with privacy in mind as some experiences are very personal.
Here’s the latest Tic Log entry:
| Tic Log |
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On Aug 20, 2026, a reader experienced clonic tics (rapid, sudden movements) involving the mouth whilst in a car |
As the entries grow, you can view tables that combine entries in that topic.
For example, these are the themes of OCD people have experienced so far.
If you would like to support
Your can support the project through Buy Me a Coffee, it helps me to continue raising awareness and keep this project moving, which is done outside of my 9-5.
You can also follow via Facebook and Instagram, and YouTube for videos.
There’s also the free Newsletter with regular updates on the project, available by subscribing below.
Thank you and I do hope this is of value!